IT IS IMPORTANT TO MAKE SURE THAT ALL ASSETS ARE KEPT OUT OF YOUR DISABLED CHILD’S NAME (INCLUDING ASSETS LEFT IN A WILL) SO THEY CAN MAINTAIN FINANCIAL ELIGIBILITY. ASSETS CAN BE WILLED FOR THEIR BENEFIT (BUT KEPT OUT OF THEIR NAME) VIA A SPECIAL NEEDS TRUST.
Special Needs Trusts – http://www.stillpointresources.org.
For children over three years old, the School District is the primary payer of services that relate to education.
The Regional Center provides respite and services for children who qualify for services. For those of you have children that are Regional Center clients consider the Medi-Cal waiver program. Children with disabilities can often be institutionally deemed and qualify for Medi-Cal. Contact your service provider at the Regional Center for more information. The Regional Center also has an emergency fund for clients of the Regional Center but it should be noted that there is now an expectation that money from the Client Help Fund is a “loan” and will eventually be paid back even if the payment is a small monthly amount over an extended period of time.
California Children Services provides medical coverage to children with disabilities. Although, autism is not a qualifying diagnosis children with autism frequently do have CCS medically eligible conditions such as cerebral palsy, intractable seizures or heart conditions. One of the advantages of being a CCS client is that Speech therapy and OT are covered.
Santa Barbara County — Multi-Agency Integrated System of Care (MISC) This agency will provide behavioral services.for children and youth with serious emotional or behavioral problems (and their families). School, community and individual services, such as therapy, job counseling, recreation, alcohol and drug rehabilitation, and parenting skills may be provided. Scott Whitely MISC 884-1600
There are other organizations that can help financially:
First Hand Foundation provides grants to children in need.
The Alpha Resource Center offer scholarships to parents to attend trainings and they have a Wellness Project that funds costs for clinical/medical needs for children that slip through the cracks. Contact Rick Seward about the Wellness Project. Call 805-683-2145.
United Cerebral Palsy Organization UCP provides certain services to familes of children with Special Needs such as a free week-end getaway at a local hotel to provide family respite.
The Campership Alliance 962-5580 offers one week camperships (like scholarships to campers).
Easter Seals also offers camperships and will pay all or part of camp for children with disabilities. (805) 692-6822
Rehabilitation Institute at Santa Barbara / News Press Fund
427 Camino del Remedio
Santa Barbara, CA 93110
Funds are available to match other monies secured for medical equipment purchases. Recipients must be Santa Barbara County residents on low, fixed incomes.
Independent Living Resource Center (ILRC)
ILRC provides information and referral assistance to obtain assistive services for persons with disabilities.
Lili Claire Foundation provides services to individuals living with Williams syndrome and other neurogenetic birth defects such as Down syndrome and autism. They partner with UCLA doctors.
The Medicine Program This organization was established by volunteers dedicated to alleviating the plight of an ever increasing number of patients who cannot afford their prescription medication.
Patient Advocate Foundation is a national non-profit organization that serves as an active liaison between the patient and their insurer, employer and/or creditors to resolve insurance, job retention and/or debt crisis matters relative to their diagnosis through case managers, doctors and attorneys.
There are now Benefits Specialists funded under a grant from the Social Security Administration (SSA) http://www.ssa.gov/work/ orhttp://www.ssa.gov/espanol/ in each of the IRLA site offices. Call Carol at (805) 963-0595 Ext. 102
CAPS of Santa Barbara, Inc. Rick Seward (805) 683-2145 Ext. 128 Offers future planning, conservatorship, special needs trust management and personal services to benefit people with developmental disabilities. Assists families in planning and providing for the lifetime care and support of a member with developmental disabilities.
Free Air Travel for Medical Needs
www.angelflight.com Angel Flight West provides free transportation to medical treatment for people who cannot afford public transportation, or who cannot tolerate it for health reasons. Angel Flight also flies missions in response to other compelling needs.
www.miracleflights.com/requestflight.html Provides transportation for kids for medical conditions.